Learn about the Condition

Information about your diagnosis can help you prepare for the future. After living with a genetic condition for a while, you will become an expert. This is the best way to be your own advocate.

Disease InfoSearch
Find Information and Support

Share Your Diagnosis

If you or a family member is diagnosed with a genetic condition, it can seem overwhelming. There are many things to think about and people that can help you through the process. 

Talk to your family
Talk to your healthcare provider

Get Organized

There is a lot to deal with after a diagnosis, and there could also be a lot of paperwork. Get your support systems in place so you can focus on health. Planning ahead can help you be more prepared for routine and emergency situations.
 
 

Plan for the future
Insurance and financial planning
Emergency preparedness